Mark Dower lived life to the full despite having Friedreich's Ataxia (FA). He was fiercely independent and creative, painting, writing, and always finding his own path, but sadly passed away age of 41 years in 2003. His family then set up the Mark Dower Trust to remember Mark, and leave a legacy that supports young people with Ataxia The Mark Dower Trust offers small annual grants directly to individuals. The aim is to support young people diagnosed with Ataxia in their quest for independent liv
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Mark Dower lived life to the full despite having Friedreich's Ataxia …
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Watch the full video here: https://bit.ly/3LRccnH FA Advocate, Christian Maugee shares his story and ways he advocates for Friedreich's ataxia. #FriedreichsAtaxiaNews #Bionews #RareDisease | Friedreich's Ataxia News
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Back in high school I was clumsy. The doctors thought I was just skinny and growing, but I think I knew something was off. My senior year of high school I was diagnosed with Friedreichs ataxia or FA, rare disorder that affects the nerves and brain. Basically, there was a genetic repeat, and my cells don’t make enough of a protein that produces energy. This causes damage and I become more uncoordinated over time. Over the years I’ve progressed through mobilityaids to support my body exactly where
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Back in high school I was clumsy. The doctors thought I was just ski…
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Webinars - National Ataxia Foundation
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Today is Friedreich’s Ataxia Awareness Day! In honor of #FAAwarenessDay, we asked Liam Dougherty, a cofounder at Day Undefined, to talk about what was important in his life. He was even joined by a special guest. Check out the full video for what he had to say! | National Ataxia Foundation
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